{"url":"https://lda.gov/api/v1/filings/90378ea6-3a06-4b1a-b413-9f6b3e61343c/","filing_uuid":"90378ea6-3a06-4b1a-b413-9f6b3e61343c","filing_type":"Q2","filing_type_display":"2nd Quarter - Report","filing_year":2026,"filing_period":"second_quarter","filing_period_display":"2nd Quarter (Apr 1 - June 30)","filing_document_url":"https://lda.gov/filings/public/filing/90378ea6-3a06-4b1a-b413-9f6b3e61343c/print/","filing_document_content_type":"text/html","income":null,"expenses":"50000.00","expenses_method":"B","expenses_method_display":"B","posted_by_name":"Beth Anne Cole","dt_posted":"2026-07-20T18:00:48-04:00","termination_date":null,"registrant_country":"United States of America","registrant_ppb_country":"United States of America","registrant_address_1":"1779 Massachusetts Avenue, NW","registrant_address_2":"Suite 500","registrant_different_address":false,"registrant_city":"Washington","registrant_state":"DC","registrant_zip":"20036","registrant":{"id":28264,"url":"https://lda.gov/api/v1/registrants/28264/","house_registrant_id":30689,"name":"NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)","description":null,"address_1":"1779 Massachusetts Avenue NW","address_2":"Suite 500","address_3":null,"address_4":null,"city":"Washington","state":"DC","state_display":"District of Columbia","zip":"20036","country":"US","country_display":"United States of America","ppb_country":"US","ppb_country_display":"United States of America","contact_name":"CAROLYN SHERIDAN","contact_telephone":"+1 202-588-5700","dt_updated":"2026-07-29T12:43:27.246417-04:00"},"client":{"id":134504,"url":"https://lda.gov/api/v1/clients/134504/","client_id":12,"name":"NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)","general_description":null,"client_government_entity":false,"client_self_select":true,"state":"DC","state_display":"District of Columbia","country":"US","country_display":"United States of America","ppb_state":"DC","ppb_state_display":"District of Columbia","ppb_country":"US","ppb_country_display":"United States of America","effective_date":"1996-02-14"},"lobbying_activities":[{"general_issue_code":"BUD","general_issue_code_display":"Budget/Appropriations","description":"Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations.","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":154619,"prefix":null,"prefix_display":null,"first_name":"MICHAEL","nickname":null,"middle_name":null,"last_name":"BEARD","suffix":null,"suffix_display":null},"covered_position":null,"new":false}],"government_entities":[{"id":34,"name":"Health & Human Services, Dept of (HHS)"},{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":1,"name":"SENATE"}]},{"general_issue_code":"HCR","general_issue_code_display":"Health Issues","description":"Rare Disease Initiatives. Newborn Screening. Genetic Testing Access. Medical Nutrition Equity Act. Medical Foods and Formulas Act. Orphan Drug Act.","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":154619,"prefix":null,"prefix_display":null,"first_name":"MICHAEL","nickname":null,"middle_name":null,"last_name":"BEARD","suffix":null,"suffix_display":null},"covered_position":null,"new":false}],"government_entities":[{"id":34,"name":"Health & Human Services, Dept of (HHS)"},{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":1,"name":"SENATE"}]},{"general_issue_code":"MMM","general_issue_code_display":"Medicare/Medicaid","description":"Medicare / Medicaid issues impacting patients with rare diseases.","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":154619,"prefix":null,"prefix_display":null,"first_name":"MICHAEL","nickname":null,"middle_name":null,"last_name":"BEARD","suffix":null,"suffix_display":null},"covered_position":null,"new":false}],"government_entities":[{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":1,"name":"SENATE"}]},{"general_issue_code":"PHA","general_issue_code_display":"Pharmacy","description":"Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Prescription Drug User Fee Act (PDUFA) Reauthorization. User Fee Agreements.","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":154619,"prefix":null,"prefix_display":null,"first_name":"MICHAEL","nickname":null,"middle_name":null,"last_name":"BEARD","suffix":null,"suffix_display":null},"covered_position":null,"new":false}],"government_entities":[{"id":2,"name":"HOUSE OF REPRESENTATIVES"}]}],"conviction_disclosures":[],"foreign_entities":[],"affiliated_organizations":[]}